As of right now Rylee is still struggling with her breathing. She continues to have episodes where she stops breathing long enough to change color (blue) and need stimulation to pick it back up again. She had two major episodes today, one requiring the RNs to use oxygen on her. The good news is that she does not have any major problems or conditions that are causing the episodes to occur. This however, does not make it any less serious or stressful when it does happen. As of right now we are not sure when she will be able to come home. She needs to take all of her bottles by mouth (just she becomes overly tired and is unable to do so) Part of her episodes are also due to her being exhausted from trying. As a parent it is very difficult to watch her struggle and know there is not much we can do. We are there everyday and hold her while we are there, reassuring her along the way.
Haylee continues to do well. She is eating all her feeds by bottle with little trouble. She has had some color changes (desaturations) during some feeds and did require stimulation earlier this week. Overall she is doing great, but they are keeping an eye on her due to the small episode. She is in good spirits and showing her personality more and more everyday.
This has been a very difficult situation for both Ryan and I. We knew that having been born so early there would be set backs and struggles along the way, however there is no way to prepare yourself for what occurs. They are beautiful, sweet baby girls, and we look forward to having them home. The stress of the situation seems to be compounded by the stress of being so far from home, and trying to figure out what to do once they are home. There are limited resources where we are at, and being so far away from their needed healthcare is concerning. We are taking everything one day at a time an will figure things out as it comes.
Rylee
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